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Featured: Patient Advocacy

A Patient Advocate acts as a support structure and a liaison between a patient and their Health Care Provider(s). The Independent Patient Advocate is a vital instrument for both patient and health care providers in the optimal delivery of health care. Patient Advocacy Groups are organizations, generally non-profit, that focus on specific diseases or aspects of health care.

You can contribute to this directory by submitting your Patient Advocacy information by emailing: .

Featured Patient Advocacy:

Advocates 4 Quality Safe Patient Care

Roberta Mikles BA RN, Patient Safety Advocate:
"After communicating, for six years, with state and federal individuals connected to the world of dialysis, I knew that something needed to be done." Learn More

Patient Advocacy Forums: http://wiki.patientsville.com/tiki-view_forum.php?forumId=6

Patient Advocacy Directory:

Genetic Alliance	Provides information and assistance to increase the capacity of genetic advocacy organizations through networking and education, and assists individuals with genetic conditions.	http://www.geneticalliance.org/
The Children's Rare Disease Network	The Children’s Rare Disease Network will create greater public awareness for rare disease, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.	http://www.crdnetwork.org/
National Organization for Rare Disorders (NORD)	A federation of voluntary health organizations helping people with rare diseases; includes a database of patient support and health-related organizations.	http://www.rarediseases.org/

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